Showing posts with label living disabled. Show all posts
Showing posts with label living disabled. Show all posts

Thursday, October 14, 2021

Helloween 2021 Day 14: Let Me Out of this Movie

 


Background image by Elena on Pixabay

Text art and effects by Ornery Owl (Cara Hartley)

in the autumn of my life
I hoped to find a little peace
freedom from reminders
of how I've fucked up my life
but people just can't let me be
everyone insists on reminding me
that my body is broken 
as if I didn't know
I've always wanted to be invisible
but I'm just too strange
seen as obscene
I want to leave this scene
let me pass by your screen unseen
should you see me walking by
turn a blind eye

please
can't you just let
this lonely xenomorph
walk on by
I want to leave this movie

I have a whole bunch to say, so I'll credit the prompts used first in case you'd rather stick with just the poem.

prompts

further thoughts
When I lived in the suburbs of a major city, I could anticipate randos shouting crap at me from cars if I tried to take a walk, so I never did. 

I now live in a town of 134 people, many of whom want to be up in my business because, despite the fact that I want nothing more than to be invisible, I'm very visible.

My back is fucked up and I find that using an upright walker helps me keep pressure off my lower back so I can walk longer distances without pain. I can also stop and rest. This situation is unlikely to improve.

I need to either go out early in the morning or late in the evening because otherwise, it's just too "people" out there. As a wise soul once said, "I hate when I go out in public and the public be there."

I'm quite introverted and I have social anxiety. I used to alleviate my social anxiety by getting trashed. I don't want to get trashed anymore.

I can deal with people in small doses but I don't do well with people who either deliberately or inadvertently point out everything that is "wrong" with me. I also have body dysmorphic disorder and it is hard for me to see myself in a neutral light.

I don't like to call attention to myself but the big blue frame I use so I can walk with less pain is pretty damn visible. 

I've always been different, and I've always been very aware that I was different. I once read an interview with Phil Lynott of Thin Lizzy where he discussed life as a mixed-race person in a primarily white country (Ireland.) 

Phil said that he did not have a difficult childhood. His mother ran a bed and breakfast and provided a solidly middle-class lifestyle. Phil was well-liked at school and said that he never encountered any overt racism, but he was always extremely aware that he was different and it bothered him considerably.

I deeply resonated with what Phil said. I'm pasty white, which one would think would render me mostly invisible in Western society, but I haven't had that luck. I've often heard that I'm extremely ugly, but I've also heard that I'm "beautiful." 

The guys who spout that nonsense probably think that I'm an easy mark because I'm strange-looking and insecure. When they find out I'm not an easy target, their rhetoric quickly devolves to the same tired insults. Yes, I know, I'm fat, I'm ugly, I'm a bitch. That being the case, why the fuck are you bothering me?

As I've gotten older and more disabled, I've had fewer assholes trying to get into my pants. I always say that one asshole in my pants is enough, and I guess you can interpret that as it suits you. Either the person wearing my pants is an asshole, or opinions are like assholes and everyone has one. Both are probably true in my case.

Something happened earlier in the week that really bothered me, and I didn't realize how much it bothered me until I started crying about it yesterday. I'm not given to tears. I usually get angry. But this got under my skin and festered.

There is a man in town that gives me unwanted pep talks whenever he sees me. I'm an agnostic and a realist. I don't think there's going to be any miraculous healing in my case. Whatever. I try not to roll my eyes too hard. But on this occasion, the conversation took a troublesome turn.

Mr. Pep Talk told me that I have beautiful hair. I don't like to talk about my appearance, but, okay, whatever, I have very thick, wavy gray hair. I started going gray at 27. I used to use henna, but I developed a sensitivity to it. Now I just use silver hair dye every few months to give my mop a bit of pop--for my own benefit, no one else's.

I hoped we were done at the "beautiful hair" commentary. Alas, it was not to be. He went on to say:

"If we could just get your body to match your hair, you'd be a real doll."

I felt kind of sickened by that comment if I'm to be honest. It implies several things, none of them particularly good. I didn't have a good response because I was kind of taken aback. I simply said, "I don't care what I look like."

"Well why?" he asked, and given his expression, you'd think that I'd just revealed that I had been sacrificing my neighbors at midnight every full moon, and he was next.

"Because I'm this," I said, tapping my forehead. "I'm not this," followed by a sweeping gesture indicating my body.

"Oh, Honey, you've got to believe in yourself," he said.

Living in a small town, I can't really afford any animosity, so I just gave a non-committal "okey-dokey" and went on my way. 

I don't know why the Universe thinks that shitty cake needed any icing, but it provided me with icing. As I tried to make my way home, a utility worker asked me if I needed a ride home. I tried to make a joke about it, which he didn't get.

"I'm just taking my walk. If I don't, nobody else will."

"Okay, but do you need a ride?"

"No thanks. I live right over there."

Fucking fuck's sake. 

I haven't been for a walk since.

I'm thinking about getting some big, obvious headphones so I can ignore people and have an excuse for it.



Please, please, please, don't condescend to disabled people. It's extremely demoralizing. 

We don't want to hear about how (your) God will heal us if we just pray hard enough.

Don't tell us that we "just need a positive attitude" or "miracles can happen." I suppose they can, but the reality is, it's not likely.

I also have diabetes, and it feels kind of like this when people tell me about "miracle cures" or how their brother's wife's uncle's best friend's sister was cured of their disease or disability by some sort of questionable practice or snake oil.



Unless we're obviously struggling, i.e. with an overload of parcels, don't offer to help. 

Don't focus on our disability or our mobility aid.

Don't tell us our condition is "a shame" or that we're "too young" to be so compromised. 

Don't use terms like "handicapable" or "differently abled." That shit is so condescending. I'm disabled. I'm handicapped. That's reality. That other shit feels like telling a toddler "you're getting to be such a big girl!" Don't do it.


I guess that's about all I have to say about that.

Crowley and I are done with everyone's shyyyyt

"There is nothing to writing. All you do is sit down at a typewriter and bleed.”

Ernest Hemingway

The Icky, Sticky, Nit-Picky Legalese If You Please (Or Don't Please)


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Wednesday, September 22, 2021

30 Days of Haiga 2021: Method to Madness (Double Haiga)

 


Background image by Simon Hurry on Unsplash
Text art and effects by Ornery Owl (Cara Hartley)

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Word Prompt: Method





Notes if you Need 'Em
Though you don't have to read 'em
Just read the poem if you'd rather

I was inspired by the second and third poems offered for inspiration by Poets and Storytellers for the Weekly Scribblings, though my interpretation might be a bit obscure. 

My heart is indeed jaded, and reason would be welcome, but there is neither reason nor compassion when dealing with government agencies. I see them for what they are: sadistic and soulless collectives that delight in keeping people who are struggling downtrodden. 

I worked as long as I possibly could to avoid having to deal with these Nazgul. Then the day came when the final body part gave way and I couldn't work anymore. I still don't have full range of motion in my left arm and I have to use an upright walker to go more than very short distances.

The knotted, grinding feeling in my stomach and the grinding of my teeth are courtesy of SSDI, Medicare, Medicaid, and the Inhumane Services department here in Shitkicker County. My jaw hasn't ached this much in months.

I started receiving disability payments back in February. Can't live without 'em, but I'd rather not have to live with 'em. 

I was doing fine with SSD plus Medicaid. Then, here comes Medicare. The benefits from Medicare are quite good, but they cost me $140 a month...

Which comes out of my disability check...

The check which just covers bills with a little left over for food and fuel.

The bulk of our household's food comes from the food bank, but it's still necessary to buy some meat and cheese. 

Anyway, I was told to contact Medicaid and have them pay my Medicare premiums.

Which they won't.

Why?

Because my disability check grants me a generous sum of $1390 per month.

The cutoff for Medicaid to pay my Medicare premiums is $1308 a month.

You can read the following links to see how disability screws people.




A person on disability is not allowed more than $2000 in savings.

A person on disability is only allowed one vehicle. So, if you think it would be good to have an auxiliary vehicle in case your main vehicle is in the shop? Ha! You fool, you!

What little money I make comes from doing book reviews. In a good month, I may make $150. Most of the time it's less.

My son and I are being allowed to live in the house where we reside rent-free, courtesy of my ex-husband who owns the house. He used to help us monetarily, but his reserves are tapped. 

I try to have a semi-positive attitude, but lately I want to scream, cry, and throw bricks at Congress and any smug one percenter who spouts off about the trickle-down theory. Also at the space cadets Elon Musk and Jeff Bezos. I'm trying to keep it PG-13 here, but as my late father would have said, these people can go pound sand. 

So, there's my story, it's sad but true.

I surely hope it don't happen to you.

~Ornery Owl Has Spoken~


I wish I could be doing this
Free-use image from Open Clipart Vectors

The Icky, Sticky, Nit-Picky Legalese If You Please (Or Don't Please)


Creative Commons License


This work is the intellectual property of Naughty Netherworld Press/Poetry of the Netherworld.

Reblogging is acceptable on platforms that allow it. Odysee’s reblog function is called repost, which makes things confusing since reposting is considered a no-no on most platforms. It’s fine to share the post using the repost function on Odysee. It is not okay to copy-paste the material into a new post.

Sharing a link to the post is acceptable.

Quoting portions of the post for educational or review purposes is acceptable if proper credit is given.

Want more poetry?
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Or buy me a coffee here

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Monday, September 20, 2021

30 Days of Haiga 2021: The Carnival Departs

 


Background image by Antony on Unsplash
Text art and effects by Ornery Owl (Cara Hartley)

Inspired by the two songs that appear at the end of the post: Rainbow Eyes and Carnival of Rust.

I was feeling deeply melancholy when I created this. It's that time of year when I have to prove I'm worthy to continue receiving Medicaid. I owe the IRS close to $600, and for me, that's a fortune. My son and I went to the food bank today. My nights have been rife with sleep paralysis and horrific dreams.

With my broken body, mind, and soul, I feel like an abject failure. I try to convince myself that I'm doing the best I can and it's okay, but sometimes I just can't. My "best" doesn't seem to be a fraction as good as other people's worst.

I felt strong suicide ideation today.

I wonder how much of it is me and how much of it is me wondering "how does the world think it's okay to let people become this broken, or worse?"

The carnival prompt reminded me of certain moments in my youth when I allowed myself to believe that my life was going to be wonderful. I became giddy and drunk on those daydreams. Sometimes I wish I'd never had them. They allowed me to believe that I was better than I was.

The carnival is a metaphor for the glamour that we are convinced we should pursue. Celebrity worship is like drinking poisoned champagne. It tastes good and it gets you high, and then it leaves you with a rotten headache and reeking of vomit.

Truth be told, I don't need poison in my champagne for it to have that effect. Best that I stick to club soda with lime.

I've been trying to just let my poetry do the talking, but I felt the need to throw in a note today. I've started to realize that the middle of the month sucks for me.


~Ornery Owl Has Spoken~


Free use image from Open Clipart Vectors

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The Icky, Sticky, Nit-Picky Legalese If You Please (Or Don't Please)


Creative Commons License


This work is the intellectual property of Naughty Netherworld Press/Poetry of the Netherworld.

Reblogging is acceptable on platforms that allow it. Odysee’s reblog function is called repost, which makes things confusing since reposting is considered a no-no on most platforms. It’s fine to share the post using the repost function on Odysee. It is not okay to copy-paste the material into a new post.

Sharing a link to the post is acceptable.

Quoting portions of the post for educational or review purposes is acceptable if proper credit is given.

Want more poetry?
Get it here!

Buy me a coffee

Or buy me a coffee here

Join me on Odysee

Join me on Patreon!
Subscribe for as little as $1 per month.

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Wednesday, January 22, 2020

Carpe Diem Tan Renga Wednesday: Such a Cold Night

Image by Robson Machado from Pixabay

lying down
with quilts over the head
such a cold night
I spent many nights like this
in a trailer with no heat

~cie~


notes
The Hokku stanza was written by Matsuo Basho (1644 - 1694). The Ageku stanza was written by me. It is autobiographical.