My words have been stolen
My thoughts all erased
A shadow wearing my image
Has taken my place
There's no way back in
Somehow I've lost the key
Although I no longer remember
Please don't forget about me
Images by Cie
Words by Adam
Notes:
I almost feel bad for sharing a poem about a grim subject like dementia after the praise I received for my overall positive poem yesterday. However, although one can see the beauty in the clouds and in nature, somber things like dementia and mental illness still exist, and I do not shy away from discussing them.
Today's writing prompt at OctPoWriMo suggested taking a favorite scene from a movie or a music video, turning the sound off, and seeing what thoughts were inspired viewing the silent clip. At first I was going to do a funny bit from the old Batman/Superman cartoon, but then I was reminded that one of my favorite musicians (and overall favorite people) has had his voice stolen from him by an incurable illness which destroys not only body but mind. I knew I had to write about this.
Using some of the Photoshop images that Cie has created over time to honor Malcolm, I created the above poem. I tried to keep it simple and to see the incident through my subject's eyes. He was a humble person. He was courageous. He put others' needs before his own.
He never stopped fighting against the odds. He won against addiction to alcohol, though unfortunately not against addiction to nicotine. He wrestled with depression and social anxiety and was victorious. He approached the devastating dementia diagnosis the way he approached everything else in life: by going up against it with determination and dignity.
One might say that this is a battle that he did not and could not win. I disagree. Yes, the disease process has destroyed his ability to function in this world. Yes, the disease process will eventually kill his physical body. However, the disease is not and will never be victorious over one with such a determined spirit.
One day we will eradicate such diseases. For now, it is important that we continue to remember those whose lives have been devastated by these illnesses, to not sweep the subject of dementia under the rug because it's depressing to think about. We need to remember, and we need to come out swinging and keep fighting until such diseases are no more.
With Hope,
Adam