Showing posts with label mental illness stigma. Show all posts
Showing posts with label mental illness stigma. Show all posts

Monday, November 11, 2019

Carpe Diem #1779 Cliffs of Moher ... a tribute to Jane Reichhold (monody, Senryu)


in that last moment
I hope that you were at peace
may you now fly free

~Cie~


Notes:
I was previously unaware that Jane Reichhold (1937 - 2016) had committed suicide because the pain of her fibromyalgia had become unbearable. Please click the Fishy banner to find out more about Jane's story.

We will never learn how to reduce the rate of suicide if it is a stigmatized, taboo subject. If people are afraid or ashamed to discuss suicide ideation, then their struggles will remain internalized. The ways that suicide ideation and attempted suicide are currently handled are ineffective and the unthinking and unfeeling diatribe that the surviving family members of a person who committed suicide are subject to are simply shameful.

Any time a celebrity commits suicide, there's always someone sanctimoniously spouting about how "selfish" this person was, and I want to take them aside and shake them and shout: "Hello, you insensitive twit! Did it never occur to you in your moment of self-righteousness to realize that anyone listening to you could have a loved one who took their own life? How dare you be so thoughtless!"

When I was in high school, I had a friend whose brother had committed suicide when she was eight years old. She said that people would come up to her on the playground and tell her that her brother was in hell for what he'd done. I say there ought to be a special spit in hell reserved for mealy-mouthed marshmallows who make such unkind assertions.

I leave you now with this banner that I use as my Facebook avatar anytime a celebrity takes their own life because I just know that the ignorant spoutings are going to elevate at such times.


Tuesday, May 7, 2019

Tan Renga Challenge 2019: Day 6: In Shadow


autumn moonlight--
a worm digs silently
into the chestnut.
presenting a sunny face
though my brain feels full of worms

Basho & Cie


Notes:
The Hokku (Haiku) stanza of this Tan Renga was written by Matsuo Basho. The Akegu (closing stanza) was written by me.
Matsuo Basho was born in 1644 and died 28 November 1694. As a point of coincidence, my father died on 28 November 2010.
As Chèvrefeuille explains, Basho's Haiku references his desires for a man. Basho was a Samurai, and, as with the warriors of ancient Greece, homosexuality was considered normal and acceptable. Relationships between older men and adolescent boys were also considered acceptable.
I do feel that homosexuality is normal and acceptable, but I think it is better not to have sexual relationships between adults and youth.
My portion of the poem does not refer to my sexuality. Being heterosexual, I never found myself in the position of keeping my sexuality a secret. It refers to living with mental illness in a society which stigmatizes people who struggle with depression and suicidal thoughts. 
Some people think that in this age of readily available psych meds, no-one should struggle with psychological problems. Many people do not respond well to psych meds, and not all psychological problems are chemical in nature.

Friday, April 19, 2019

NaPoWriMo 2019 Day 19 + Poems in April Day 1 & 19: Aprils Ago

Per Ohlin
17 January 1969 - 8 April 1991
Death by a self-inflicted gunshot wound


Aprils ago a
Broken spirit
Chose
Death
Empathy
Found me
Grieving
His passing
Impotently
Just thinking
Kind thoughts and holding
Love in my heart
Made
No difference
Protecting a soul
Quite so
Raw and
Sad was
Terribly
Unlikely
Vain regretting
While wishing that
Xolotl would guide
You to the spirit world by a gentle
Zephyr

~Cie~



Notes:
Seldom have I encountered a more troubled soul than Per Ohlin. As my lovely friend, the late Walt Cessna would have said, he was fukt 2 start wit. 
(This was the title of Walt's autobiography. He said that I inspired him to actually sit down and write it. I have always treasured this knowledge. Walt died from complications of AIDS.)
I sometimes become overwhelmed and try to bury my empathic nature. It doesn't stay buried for long. Maybe a minute, maybe an hour, rarely more than a day, and then, as Per once wrote, up from the tomb it comes. I can't ignore the soul calls for long.
I wish I had known about the phenomenon of soul calls when I was younger. It could have saved me a lot of grief, but it's too late now. Anyone who is of a metaphysical mind is welcome to read about this issue here. For anyone who is not of a metaphysical mind, do us both a favor and don't bother. This isn't the high school debate team, I'm tired, and I have no desire to bend anyone to my own particular set of beliefs. 
I am utilizing the Poems in April prompts again, but I am not joining up with the Linky in order to prevent another barney from brewing. Instead, I will comment on a few poems from people who have been kind and supportive along the way. Bit of a shame as I was getting a kick out of having so many visitors, but I find confrontation stressful, so best to keep that gate shut, I think.


Tuesday, April 16, 2019

NaPoWriMo 2019 Day 16 + Poems in April 2019 Day 16 & 5: Poetry As the Place Where the Spirit Within Hemorrhages Truth

Image by Enrique Meseguer from Pixabay

You return whenever I write poetry
Troublesome little ghost
Not sugar and spice and everything nice
You mournful, shadowed thing

Troublesome little ghost
Your nights filled with wanting and regret
You mournful, shadow thing
Needing to bleed out your words

Your nights filled with wanting and regret
I allow you to emerge from my cold shell
Needing to bleed out your words
"The poem is the way," I say

I allow you to emerge from my cold shell
Offering truth a way to be set free
"The poem is the way," I say
You need not put on false airs with poetry

Offering truth a way to be set free
Poetry, I think, is ultimate honesty
You need not put on false airs with poetry
Or so it is that I have always believed

Poetry, I think, is ultimate honestly
You need not pretend to be aught but what you are
Or so it is that I have always believed
But there are those who disagree on poetry

You need not pretend to be aught but what you are
You need not present as light when you are shadow
But there are those who disagree on poetry
Poetry, they say, is the domain of sugar and spice

You need not present as light when you are shadow
Sad little ghost, pay no mind to the Poetry Police
Poetry, they say, is the domain of sugar and spice
Bleed your truth as freely as you need

Sad little ghost, pay no mind to the Poetry Police
You mournful, shadowed thing
Poetry, they say, is the domain of sugar and spice
You return whenever I write poetry

~Cie~



Notes:
The poetic form is Pantoum. Fortunately, a Pantoum need not rhyme.
The Poems in April prompt #16 was to create a poem with a title starting with "Poetry As..."
The Poems in April prompt #5 was to describe a supernatural creature who is a troublesome housemate. I can think of no more troublesome a housemate than the child I once was who each day laments that the big dreams she had for her life slip further and further away from her grasp, fading into the impossible.
I think the NaPoWriMo prompt ended up eating the dust of the other two prompts.
A couple of years ago when I was doing OctPoWriMo, I almost ended up ceasing participation in poetry blog hops for good when I allowed the troubled spirit who will always be a part of me to express itself and was admonished that my poetry was "catharsis" and I would one day become "a beacon of light in the world" or some such thing.
To me, these well-meaning but inaccurate statements showed two things.
First, that people who are not happy by nature are unacceptable as they are and must become, or at least pretend to be, the sort of person who is "a light in the world." 
Second, that dark poetry (and depressive people) are not as valid or worthwhile as happy, well-adjusted people writing poems about the joys of life and how grateful they are to live under the rule of a benevolent deity in a happy and joyful world where there are no Debbie Downers or Negative Neds messing things up with their dark ickiness.
To me, poetry must remain the domain where you can TELL IT LIKE IT IS, not like other people think it's supposed to be.
Poetry must remain the place where one can hemorrhage one's soul all over the damn place and not have people constantly trying to slap smiley bandages on their spiritual wounds.
Poetry must be allowed to be dark and filled with pain.
During the final years of my nursing career, a statement had been popularized that "PAIN IS WHATEVER THE PATIENT SAYS IT IS." 
I greatly advocate for this belief. It is so much more helpful than awful epithets such as "drug-seeking behavior," which had previously been the dismissive go-to whenever a patient requested pain medication earlier than it was scheduled. 
People who experience high levels of chronic pain do not respond to pain medications the way people who do not experience chronic pain (or who experience chronic pain of lesser degrees) respond to pain medication. A person with high levels of chronic pain could ingest enough pain medication to knock out a large horse and be perfectly coherent, and I'm only being slightly hyperbolic.
FYI, low-grade chronic pain (such as I have) isn't a walk in the park either. I'm tired all the time and have a tendency to experience brain fog and disturbed sleep. My pain levels aren't such that I require narcotics, but NSAIDS don't really help. 
I experienced intense chronic pain for about six weeks when I initially injured the median nerve in my left arm. I couldn't sit up for more than about 45 minutes before I had to lie on the arm to try and numb it. Intense chronic pain is no joke, and anyone who says things like "people need to just push through the pain" or fail to understand why people become so desperate for relief that they obtain medications through illegal channels because the medications they've been prescribed legally aren't cutting the mustard need to get off their high horse. 
At this point, my left arm constantly tingles. I've gotten enough sensation back in my left hand that it no longer feels like a lump of clay, but I was damn grateful for "lump of clay" as opposed to constant searing pain up and down the arm. Physical therapy saved my life, literally. I would need more P.T. to get rid of the constant numbness and tingling, but Medicaid will only pay for 12 sessions per injury. Better than nothing, but ridiculous to put a limitation on the sort of thing which doesn't tend to behave in a predictable fashion.
In any case, just as pain is whatever the patient says it is, POETRY IS WHATEVER THE POET SAYS IT IS.
My poetry need not be "catharsis." It need not lead to me becoming "a beacon of light in the world" to be absolutely 100% valid. The wounded inner self is allowed to express its truth without expectation of transformation.
People with depressive personalities are valid as they are. They need not be drugged into compliance. For some of us, the drugs don't work anyway, or they make things worse. Drugs are not the answer to everything.
I don't need to be like you. 
I am valid just as I am.
Apologies for jumping on ye olde soapbox, but some things cannot be said enough.







Sunday, October 28, 2018

OctPoWriMo 2018: Day 28: Schism


Demanding that one
Who has been repeatedly broken
Must make the choice
To appear whole and happy
In order to bridge the chasm
Between rejection and belonging
Only serves to foster
A life built on a lie
The schism remains
And the least misstep
Means falling back into the abyss

~Cie~



Wednesday, October 24, 2018

OctPoWriMo 2018: Day 24: Out of the Attic


Outside
Unlock
Fling
Freely
Gape

The madwoman has escaped from the attic
And cut through the red tape

Unlock
Fling
Freely
Gape
Outside

She stumbles out into the sunlight
No longer will she hide

Fling 
Freely
Gape
Outside
Unlock

The people hide in the shadows
To see her in the open is quite a shock

Freely
Gape
Outside
Unlock
Fling

How dare she try to approach the good people?
She's such a hideous thing!

Gape 
Outside
Unlock
Fling
Freely

Surely she doesn't fancy herself equal to us
Who does she think she is really?

Outside
Unlock
Fling
Freely
Gape

The madwoman has escaped from the attic
And cut through the red tape

~Cie~


Note:
I have type 2 bipolar disorder which was not properly diagnosed until I was 38 years old. I first noted symptoms of bipolar disorder, then termed manic depression, in myself when I was taking a psychology class in high school. I approached the teacher with my thoughts, and she told me that I couldn't be manic depressive because manic depression was a psychosis, and I evidently wasn't psychotic.
Bipolar disorder has since been recategorized as a mood disorder rather than a psychosis.
Bipolar type 2 can be difficult to diagnose because it presents with hypomania rather than full mania. Bipolar 2 does not have psychotic features. Bipolar 1 may or may not present with psychosis.
I have experienced mania and psychosis when they were triggered by SSRI's, the darlings of the psychiatry field. It was terrifying and upsetting. While taking Effexor, a patient in the long-term care center I was working for at the time asked me why I was so happy. I wasn't happy, I was manic as fuck and felt completely out of control. I never experience mania if I don't take SSRI's. 
Just another reason why people suggesting that I should "try medication" makes me want to go all Norman Bates on their ass. I did, and the cure was worse than the problem. Having a psychiatric anomaly does not make a person stupid.
I realize that sometimes it can be difficult when dealing with people who do improve with use of medication and who then feel as if they have been cured and quit taking the medication. Psychiatric dysfunctions are not one size fits all. 
I do best using a low dose of Lithium Orotate. It short-circuits the irritability that is part and parcel of my condition.
I once had a doctor tell me to "just stay on" a medication (Zoloft) which made it feel as if my brain had developed tiny hands and was trying to pick its way out of my skull. To this day, I would like to know how the fuck he thought that was an improvement. That was a psychotic reaction to the medication. I normally do not experience psychosis. I knew it wasn't really happening, but it sure as fuck FELT as if it was really happening, and who the hell knows what I might have done to stop it if it kept on. 
These medications are not "happy pills." They change the brain chemistry. Some people are helped by them. For some, they don't work at all. For others, the cure is worse than the disease.
I think that one thing which desperately needs to change is the idea of making people who live with neurological or psychological differences into "normal" people, and to stop acting as if those of us who live with these conditions are "broken." 
It would have been nice to learn how to live with a brain like mine from the time I was in my youth rather than being told that I had to be "fixed," to be "normal." 
I will never be normal.
I will only be me.
Stop the stigma.


Haiga copyright The Real Cie
You are welcome to use it with a credit back to me.

Sunday, October 29, 2017

The Cheese Grates It: The Dark Half

Tattoo template for Audrey II
Artist Unknown

Being treated like a broken idiot that just needs to be fixed is a major reason why people with mood disorders or other psych conditions don't tend to share their work with the public. Poetry can have a hyperbolic component. My dark poetry is far better technically than any light stuff I try to write. 
As to my emotions, the dark half is always there, even when things are going pretty well. Currently, they aren't going at all well.
People like to treat people with mood disorders like idiot children or a broken sub-human that can be fixed. Actually, our brains are not slower than the brains of people who see the world as sunshine and rainbows and can smell the unicorn farts. In fact, when doing mundane tasks, the brains of people with bipolar disorder who are in a euthymic (balanced) state "light up" far more than the brains of people who do not have a mood disorder. A bipolar brain is an overactive brain, not a slow one.
I also find that when reading my work, people miss the part where I'm likely more than halfway through my life and it's kind of insulting to treat a middle-aged adult like a halfwit child. It's also insulting to treat a developmentally disabled person like a halfwit. People whose brains work differently do not need to be "fixed." The best thing for us would be acceptance. I find myself snorting derisively as I write that because I know for a fact that it will not happen in my lifetime.
Perhaps the best thing a reader can do is to appreciate the art or writing (in this case, poems, class. The lassie fancies herself a poet.) and not try to fix the author. Writing is supposed to be for expressing oneself. When the only replies one gets to one's work are suggestions on how to fix one's flawed, broken self, and one's flawed, broken words, one does not tend to be prone to wanting to share said work. Just a thought.
It's lovely for you if you don't have to contend with a mood disorder. I wouldn't wish it on anybody, except maybe the kinds of people who think it's funny to bully others. Might be nice for them to learn a bit of empathy. However, assuming that anyone who isn't "positive" like you is broken, wrong, and probably stupid to boot is incredibly insulting.
You wouldn't tell a person to stop being so multiple sclerosis or say that one day you won't be so quadriplegic and you'll get up and walk like normal people. Anyone with half a grain of sense realizes that saying something like that is awful. So why is it okay to tell someone who lives with a psychiatric anomaly that they should get their depression out of their system (typical phrases include "stop that stinkin' thinkin'", "stop being a Debbie Downer,") and that one of these days they'll learn to act like normal (translate: good) people. 
Saying "sorry you're going through a ration of shit, hope things get better" is fine.
Saying "one of these days you'll learn not to be such a piece of shit" isn't.

~The Cheese (Certified Non-Neurotypical, not Stupid) Hath Grated It~